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Comic Con Follow-up

I posted a bunch of Comic Con photos to Flickr and got a nice message from Ariel (AKA-Poison Ivy; AKA-Baltimore Lauren). She found the photo of herself and Eric on my flickr account:
“Hey thats me as Ariel/Ivy! 😀 It was really awesome meeting you guys, I hope you had a great con! I came home and told my mom (who’s a teacher) and my sister, and they were both ‘aww’ over it! My sister, who is a huge Little Mermaid fan, is planning on helping me make an actual Ariel costume for the summer conventions we go too. ^_^ I didn’t mind at all, pretending to be Ariel, it actually was the best moment at NYCC for me. 🙂 Hopefully I’ll see you all at a future comic con!”

Baltimore Lauren does look like Ariel, minus the fin!

 

Also at the convention, they had a green screen set up so that you could turn yourself into a super hero. You have your photo taken in front of the screen and a day or two later, you can download your super hero photo from the Marvel website.

Here is my super hero!
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Track Lift

Several people have asked me about our track lift system. Because we have two children who use wheelchairs and who also have very different needs, our system is quite elaborate and probably more than most people with disabilities would need.  We have a “Surehands” system and it is a huge help.  Actually, more of a necessity now as the boys are 15, over 100 lbs each, and still growing.

Here is a view of the track in the kitchen.  This track covers most of the first floor and runs from the kitchen all the way through the living room.  The track to the right goes into the bathroom over the toilet.  The round thing in the center is a switch, sort of like a railway train switch to a second track off to the right.

Here is a view from the living room into the kitchen.

The box on the rail is the motor.  There are a couple of different kinds of motors and several different models.  They have portable motors that can be moved from one track to another.  We opted for permanent motors.  This motor rides along the track as well as up and down via the controller in Eric’s lap.  Some models have wireless controls, which would be better since the wire tends to get tangled.  But the wireless motors are more expensive.  In this photo, Eric is using the SureHands “body support”, which mimics a strong pair of hands.

Anthony can’t use the body support, because he has very little trunk or head control.  We use this sling for Anthony.  Eric can use either the body support or the sling.

We have a platform lift to take the boys up to the second floor.  I’ll have to post some photos of that soon.  On the second floor we have two separate tracks in the bedrooms.  In the master bedroom we have a track that runs from the bedroom into the bathtub.  This is an older model motor.  Some of our system is second-hand in order to save a few dollars.  Eric is in a water proof bath sling.  Anthony can not use this sling, but we also have a roll-in shower chair for him.

The motor runs by a rechargeable battery and the control works by forced air rather than electricity.  So, no worries about dropping the controller into the tub.

Here is the track in Eric’s room.  This motor only goes up and down and slides manually along the track.  Not as nice or as sturdy as the motor downstairs that moves long the track, but again, less expensive.

This is a hoyer lift on our back patio to lift Eric in and out of his hot tub.  He also uses the same bath sling in the hot tub.

Our system cost around $30,000 (not counting the outside hoyer lift).  Our private insurance covered 80% of the cost, which is super.  Many insurance policies will not cover lift systems.  Medicaid will pay for simple lifts, but usually not something as extensive as ours.

The company who installed the system is called “Lift and Care Systems” in Lakeville, MA, (508) 947-3304.  They were very nice to work with and did a super job.  The instillation was a lot of work, because the doorways had to be modified and the ceilings had to be cut open and reinforced in order to handle the weight of the system.  The lift will support over 400 lbs.  With the help of this system, I should be able to care for the boys for many years to come.

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Inauguration Invite

I got this official-looking invitation in the mail a couple of weeks ago from the “Presidential Inaugural Committee”.   I have no idea why I got this invitation.  Do they just send out a bunch of these randomly?  I did volunteer for Obama’s campaign, maybe all volunteers got one, I don’t know?   But it sure is nice and a neat keepsake of this historic day.  I only wish I could actually be there in person, but I’m sure Barack would understand that I’d need more than a couple of weeks notice in order to pull together a team to care for the boys while I’m gone;-)

I’m so excited that January 20th is finally here!  I’m also a bit nervous.  I hope all goes well today.  How on earth will the secret service be able to protect him in that huge crowd?  It sounds like a security nightmare to me.  The election of Barack Obama is a giant step forward toward equality for all, but sadly we are not there yet.  There are still some crazy bigots out there.  I don’t know how one person can hold up to all the stress and expectations that Barack is under now and for the next 8 years.

I can’t be there in person, but I plan to watch the events on TV and also do what Barack has asked us all to do, make an ongoing commitment to do what I can to serve my fellow citizens.  For me this is a renewed commitment to offer support and resources for families of children with special needs and do what I can to build a better world for children and adults with disabilities, a world in which people with disabilities are welcome members of society and given the supports they need to live a healthy and productive life.

Barack is such an extremely gifted person and his timing on the political stage could not be better.  We are lucky to have such a talented person willing to serve our country.  But he can not do this alone.  We all need to join him and do what we can to work toward peace, to save our planet, create universal health care, and support the civil rights of all Americans, regardless of race, religion, sexual preference, or disability.  Our country has been moving in the wrong direction for the past eight years.  With so much at stake, now it’s time for all of us to make a positive difference in our community, in our country and hopefully in our world as well.

Happy Inauguration Day!  Here’s to a new beginning!

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Religiolous

I finally had a chance to see the movie Religiolous with Bill Maher. I liked the movie, but unfortunately, I don’t think it was good enough to make a difference. The documentary seemed a bit disorganized. It started off funny, slowed to a crawl in the middle and ended powerfully. The best part of the whole movie was the last 10 minutes where Bill talks about how religion has the capacity to destroy mankind.

One point was made clear in the movie. Basically, all religions are the same and have little connection with facts or reality. Most people actually know very little about their own religion, they simply believe what they have been taught without much thought or proof. I would have liked to have seem more time spent on the history and facts, as they relate to gods and science, rather than so much time spent talking to crazy people. But I guess that wouldn’t have been as funny and after all, Bill Maher is a comedian.

The take home message? Religion is detrimental to the progress of humanity. When religious fanatics are allowed to control governments, history has shown, from the Crusades to George W. Bush, that the results can be disastrous. Now that we have the power to annihilate ourselves, Armageddon could easily become a self-fulfilling prophecy. If rational thinking people do not stand up against religion, we are all doomed.

I doubt this movie will change the minds of many believers, in fact, I would guess that the people most likely to watch this movie are Atheists. Excuse the pun, but I’m afraid Religiolous will be “preaching to the choir”.

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