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When you Wish Upon A Star

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Through the cooperation and generous donations of ThermoSpas, Priority Electric and the Starlight Children’s Foundation of New England, Eric — an 8 year-old second grader from Grafton, MA who suffers from cerebral palsy (CP) — had his wish granted just in time for summer.

The Starlight Children’s Foundation of New England is a non-profit organization dedicated to improving the quality of life for seriously ill children and their families. The Foundation grants wishes to children with chronic health problems and wanted to offer Eric, who has suffered from CP since he was born prematurely, the chance to make his dream come true.

When Starlight approached Eric and his family about granting his once-in-a- lifetime wish, Eric had a big decision to make. A huge Disney fan, Eric first mentioned that he would love the chance to hang out watching movies at the Disney Store for hours. Another wish idea he tossed around was to ride in an elevator in a tall building for a day. Yet, much to his parent’s relief, Eric — who is confined to a wheelchair – decided he really wanted the freedom and relaxation he got from a hotel hot tub, but in his own backyard.

bubblingover2After being contacted by the Starlight Children’s Foundation of New England about this bright, fun kid, ThermoSpas quickly decided to donate and install an Avalon Spa, which is big enough to fit the whole family, yet still fit in their backyard. It comes with 22 jets for therapy and an ice bucket and shelf for drinks. Priority Electric stepped in and donated the electrical hookup.

Eric calls his hot tub, appropriately enough, a “Cinderella Pool.” The name comes from his great fondness for the “stepsister-turned-princess.” Yet, the selection also shows the uncanny similarity between Eric and the fairy tale character who, through the kind granting of a wish, is able to see her dreams come true and her life change for the better.

Not only does a hot tub provide Eric with a chance to move and play freely on his own, but it also offers proven therapy. Eric’s doctor, Christopher Stille, MD of UMASS Memorial Health Care, says the benefits of hydrotherapy (water therapy) include:

  • Muscle relaxation, which can reduce muscle spasms in children with spastic CP
  • Decreased gravity, which increases breath control
  • Improved trunk control, balance and coordination
  • Increased mobility and range of motion for children who are wheelchair-bound
  • Increased strength and endurance

Eric lives with his parents, Cynthia and Richard, his twin brother Aaron, and his adopted brother Anthony. Aaron, like Eric, was born prematurely and has had some severe health problems including a now-removed tracheostomy. Eric’s brother Anthony also has cerebral palsy and is confined to a wheelchair.

Eric’s wish-come-true attracted quite a bit of local media coverage and was featured on The WB56 News and on the New England Cable News and in The Worcester Telegram & Gazette and The Grafton News.

bubblingover3Michelle Connolly Roberts

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When You Wish Upon A Star

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ThermoSpas Helps Starlight Make A Sick Child’s Wish Come True

ericbandwThrough the cooperation and generous donations of ThermoSpas, Priority Electric and the Starlight Children’s Foundation of New England, Eric — an 8 year-old second grader from Grafton, MA who suffers from cerebral palsy (CP) — had his wish granted just in time for summer.

The Starlight Children’s Foundation of New England is a non-profit organization dedicated to improving the quality of life for seriously ill children and their families. The Foundation grants wishes to children with chronic health problems and wanted to offer Eric, who has suffered from CP since he was born prematurely, the chance to make his dream come true.

When Starlight approached Eric and his family about granting his once-in-a- lifetime wish, Eric had a big decision to make. A huge Disney fan, Eric first mentioned that he would love the chance to hang out watching movies at the Disney Store for hours. Another wish idea he tossed around was to ride in an elevator in a tall building for a day. Yet, much to his parent’s relief, Eric — who is confined to a wheelchair – decided he really wanted the freedom and relaxation he got from a hotel hot tub, but in his own backyard.

After being contacted by the Starlight Children’s Foundation of New England about this bright, fun kid, ThermoSpas quickly decided to donate and install an Avalon Spa, which is big enough to fit the whole family, yet still fit in their backyard. It comes with 22 jets for therapy and an ice bucket and shelf for drinks. Priority Electric stepped in and donated the electrical hookup.

Eric calls his hot tub, appropriately enough, a “Cinderella Pool.” The name comes from his great fondness for the “stepsister-turned-princess.” Yet, the selection also& shows the uncanny similarity between Eric and the fairy tale character who, through& the kind granting of a wish, is able to see her dreams come true and her life change for the better.

Not only does a hot tub provide Eric with a chance to move and play freely on his own, but it also offers proven therapy. Eric’s doctor, Christopher Stille, MD of UMASS Memorial Health Care, says the benefits of hydrotherapy (water therapy) include Muscle relaxation, which can reduce muscle spasms in children with spastic CP, Decreased gravity, which increases breath control, Improved trunk control, balance and coordination, Increased mobility and range of motion for children who are wheelchair-bound, Increased strength and endurance.

Eric lives with his parents, Cynthia and Richard, his twin brother Aaron, and his adopted brother Anthony. Aaron, like Eric, was born prematurely and has had some severe health problems including a now-removed tracheostomy. Eric’s brother Anthony also has cerebral palsy and is confined to a wheelchair.

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My Brothers

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Published Spring 2002, Worcester Area Arc, Inc., “Our Journey” Newsletter

Anthony, Aaron and Eric, all 8 years old,  playing in their living room.
Anthony, Aaron and Eric, all 8 years old,
playing in their living room.

I like my brothers.
My brother Eric is a good brother, but he screams when he is mad.
I play games with my brothers; they are in a club with me.
I sometimes pretend to be the teacher.
I teach them math.
Anthony is very, very nice and does not scream.
He is my new brother and I am glad he lives with us.

by Aaron Bissell

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You Will Dream New Dreams

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You Will Dream New Dreams, edited by Stanley D. Klein, Ph.D. and Kim Schive, published by Kensington Publishing Corp.

Book Review by Richard C. Bissell

Most parents of children with special needs experience periods of obsession over what might have been. They find themselves asking, “what would my child be like if not for…” Many times we struggle to find the good, to find the positive in what life has thrown at us. Wouldn’t it be nice to interact with other families who have “been there,” faced many of the same things that we face, and are willing to share their pain, their dreams, the challenges and their successes with us?

In reading “You Will Dream New Dreams,” inspiring, personal stories written by parents of children with special needs, you can meet some of these people. You can grieve with them, laugh with them, and share in some of their successes. This anthology, edited by Dr. Stanley Klein and Kim Schive, is a revealing glimpse into a world that not very many people are aware of. These stories are real, they are inspiring and they are compassionate. You may not agree with all the choices that these families have made, but you will gain some understanding of what they face. Examine the case of Laura who decides to “place” her child after stipulating that “the most unnatural, abnormal, course of action, would be to place him.” This is not a choice I would make and probably not a choice many of us would make, but her story is certainly one that can be read with compassion.

Not that we spend much of our time criticizing others. In fact, it is judging ourselves that we parents do best. For an interesting outlook on guilt, read how Janice was able to “skip the guilt,” and how Diane was able to “turn obstacles into triumphs.” Many of us can empathize with Diane when she speaks of being “tired beyond belief” and how “friends and family can both strengthen and strain you.” It is easy to feel her pain when she speaks of desiring only to rock, nurse, and take walks with her new baby. Instead she is faced with days of doctor appointments, physical therapies, and medicine administration. Something many of us can relate to. We can also cheer for her and her family as they discover emotional healing and “splendid triumph.”

I found this book to be a very real portrayal of the challenges that we as parents all face when raising children with disabilities. There are not many easy days, but there are many joyful ones. The books main attraction is that is gives us a window into some of the different ways some parents cope and survive during tough times and how many of them are able to dream new dreams even as previous dreams vanish.

None of these stories are very long, so they can be read while waiting at the doctor’s office, sitting through a therapy session or running a tube feeding. Each one of them is from the heart, and they each have a unique message. Most of them are very uplifting, even as they remain true to the challenges of raising special needs children. I believe that Trena sums it up nicely when speaking as an older parent looking back at the challenges of raising a child with disabilities: “To comprehend it . . . is perplexing. To walk it . . . is horrendous. To survive it . . . is a test to the human spirit, a lesson in perseverance, a trip into the twilight zone, and a miracle! To look back on it is awesome!”
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Richard C. Bissell is a registered nurse and the father of three children with disabilities. he lives in Grafton with his wife Cindy and sons Eric, Aaron and Anthony.

January-April 2002

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Canadian Bear

By Eric Bissell
By Eric Bissell
My Uncle Bear lives in Canada.
My Uncle Bear lives in Canada.
Uncle Bear isn’t a real bear!
Uncle Bear isn’t a real bear!
Canada is a country that is north of the United States.
Canada is a country that is north of the United States.
It is very cold in Canada.
It is very cold in Canada.
The people who live in Canada do not mind the cold. They are called "hardy people."
The people who live in Canada do not mind the cold.
They are called “hardy people.”
This is because their blood is thicker than ours, so it does not freeze in the cold.
This is because their blood is thicker than ours, so it does not freeze in the cold.
My Uncle Bear likes the cold.
My Uncle Bear likes the cold.
I don’t like to be cold. I wait for Uncle Bear to travel south to visit me!
I don’t like to be cold.
I wait for Uncle Bear to travel south to visit me!

THE END

 Published by
The Children’s Publishing Center
South Grafton Elementary School
South Grafton, MA
2001-2002

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