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Aaron Bissell

Nick & Aaron

Nick & Aaron, originally uploaded by BissellBlog2.0.

Nicholas and Aaron at the premier of Nick’s documentary film, “The Soul of Genius: Yale, Yalies and the Meaning of Life.” Rich took Aaron to the big premier at Yale and they gave the film two thumbs up. I was not able to attend, but I will hopefully see it soon on DVD.

Here is the official trailer:

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Aaron & Emo

The boys are all adjusting to Emo, even Eric. Eric has a very strong startle reflex, so the chirping – more like peeping and whistling with cockatiels – makes him jump, which he does not like. The startle is a neurological issue related to his CP and not something he can control. But we are hoping that with time he will become desensitized to the noise and better able to tolerate it. Eric loves animals, just not the noises they make, especially screaming birds and barking dogs. But as birds go, cockatiels are not too bad. We shall see…
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Update – Friday 2

Well, they were unable to salvage the central line, by the time I got back to the hospital, his pillow was covered with blood and the IV fluids were running into his bed and onto his back dressing. You can’t leave your kids alone in a hospital, it’s not safe:-( My feeling has always been that if my child is well enough to go onto the regular floor, then they are well enough for me to take care of them at home. But in this case Anthony is not ready to come home yet. Let me just say that the care is much better in the PICU. I don’t know what the problem is with the floor, not enough staff or what, but I’d much rather be in the unit.

Anyway, now he has no line, so he can’t get fluid or pain meds. They gave him a dulcolax suppository to see if they can get his bowels moving along and have started feeding him pediasure. Hopefully he will tolerate this, if not he will have to go to the OR for another central line.

I helped his nurse change his back dressing, it looks really good. Nice and clean, with who knows how many sutures and steristrips from the back of his neck to his buttocks.

Rich took over at 4pm and they still had not done his x-ray. They ordered a “standing x-ray”.  I told them that this must be some sort of miracle surgery if Anthony could now stand for an x-ray, LOL!

The twins visiting with Anthony

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