Here is the smile we’ve all been waiting for! Thank you all for your kind words of support, which came primarily via Facebook. After reading some of your comments, I realized how depressing Anthony’s medical history sounds. Yes, he has had some difficult times, but really, he has only had four serious medical issues in his 21 years, which is really good for a kid with such severe cerebral palsy.
Obviously, the abuse that caused his disability to begin with was his first challenge. That was back in 1994. His birth mom was mentally ill and abusive. We don’t know who Anthony’s birth father was, not sure his mother even knew. Anthony was placed in foster care at 17 months of age and then he joined our family in 2000. It was amazing how easily Anthony fit into our family and he had many happy years with no medical problems.
In spite of his disability – or perhaps because of it – he is the happiest kid you’d ever meet. He loves people, he enjoys being out and about. He loved school when he was able to go and his smile can light up a room, as you can see by the photo above. He is currently a favorite here in the ICU at UMass.
His other three medical problems were mention in the previous post: 2006 spinal fusion, 2010 intestinal volvulus / J-tube and 2014 pneumonia / tracheostomy. Between these times, he was happy and for the most part healthy.
Although doing the laryngotracheal separation was a difficult decision, as long as Anthony recovers and gets back to his typical happy self, it’s well worth the risk, because his quality of life will be much better. Nothing is more important than being able to breathe easily. Breathing is good.