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Monthly Archives: October 2006

Anthony’s Progress

Anthony continues to make wonderful progress! He no longer needs any pain medication and his incision is pretty much healed. One interesting problem that has come up, his reflux is much worse after the surgery. I assume this is because his posture is so different now or maybe his fundoplication loosened a bit. Fundoplication is a surgery he had years ago to prevent reflux.

Fundoplication: the part of the stomach that is closest to the entry of the esophagus (the fundus of the stomach) is gathered, wrapped, and sutured around the lower end of the esophagus and the lower esophageal sphincter. (The gathering and suturing of one tissue to another is called plication.) This procedure increases the pressure at the lower end of the esophagus and reduces acid reflux.

The surgeon said this problem is common after a spinal fusion. I will ask her more about it when Anthony has his follow-up appointment on November 2nd. In the meantime, he has been started on Zantac twice a day.

Yesterday, a bunch of Anthony’s teachers came to visit him! Anthony was so happy to see them all!

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Insane Asylum

This was the view from Anthony’s hospital room. Check out the building in the center. Very interesting architecture, so I looked into it further to see what it was. Here’s what I found out:

On January 12, 1833, the old Worcester Insane Asylum opened, and was the first of it’s kind built in the state of Massachusetts. When overcrowding became a problem, a new hospital was to be built – a massive structure laid out in the Kirkbride plan.

Construction began in 1870 and the newly built Worcester State Hospital opened seven years later. Designed by architect Ward P. Delano of the firm Fuller & Delano of Worcester, the flagstone and brick building stood four stories tall, and between the 500 foot wings stood a beautiful clock tower, looming above the administration building. The building seems to reflect more of a prison complex in the styles, layout, and sheer size of the institution. On an interesting note, Sigmund Freud visited the hospital in 1909 during his only trip to America.

A massive fire engulfed the Kirkbride building on July 22, 1991, destroying almost all of the roof and floors, save for the right most wing and the administration building. The burned out shells of the other areas were bulldozed and the extra stone was used to seal up the gaping holes left by the connections to the remaining sections.

The hospital still functions as a psychiatric facility in a large, newer building near the Kirkbride (brick building to the right in the photo above).

Here’s a closer look at the old clock tower building.

Anthony is doing well at home. A visiting nurse will be coming to check on him sometime today.

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Anthony’s Incision

Anthony is so happy to be home! I talked to his surgeon today, he does not have to be seen again until next month. His sutures are subcutaneous, so they don’t need to be removed and the steristrips that you see on his back will just fall off (some have already). No school or therapy until at least after his follow-up appointment on November 2nd. So, time to rest and heal.

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WE’RE HOME!

Anthony is so happy to be home! He did amazingly well, much better than we expected. We are so please with his doctors and aside from a couple of minor issues on Friday, the nursing staff was excellent. We already knew that his doctor was good, as she operated on Eric several years ago and did an outstanding job. We also knew the PICU was very good having spent time there with both Eric and Aaron in the past, and we also know a couple of the nurses who work there. In fact, two of the nurses were from the Memorial NICU and took care of the twins back in 1993! We were concerned about the pediatric floor. However, it seems they have improved in the years since our last stay. So, an all around positive experience at UMass Medical Center.

Anthony will have a follow-up appointment in the orthopedic clinic next week. They will remove his sutures and let us know when Anthony can return to school. For now, he can get up in his chair as tolerated. We need to change his back dressing once a day. We still need to get his feeding and bowel routine back on track. He can have Tylenol with codeine for pain and valium for muscle spasms as needed. He will be seen by visiting nurses, which is really not necessary, but routine.

Now, I must go and catch up on life!

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Update – Monday

They finally restarted Anthony’s g-tube feedings at 9am this morning. I’m hoping that if he tolerates his pediasure he can come home tomorrow. He got up in his wheelchair again today and we took a walk outside. It’s a beautiful Columbus day here in New England, the leaves are changing, the sun is shining with deep blue skies and about 72 degrees.

The orthopedic doctors were in this morning and said that his x-rays look good. He said what they do in the OR is attach wires to each vertebrae, then place the rod and tighten the wires to the rod to straighten the spine. I remember the surgeon telling me that one of the wires broke during the surgery! I can just imagine the amount of force it would take to move a spine into alignment! And it’s no wonder there is so much pain associated with this surgery. They checked his back incision and one of the docs said he’s never seen so many steri-strips on one person. The incision goes from the back of his neck down to his buttocks. I assume we will have to bring Anthony back to the hospital to have the sutures removed sometime soon.

So, today was a quiet day. Rich has been doing the night shifts with Anthony and when he gets home, I head out. It’s been tough this long weekend, with no school. But Aaron has been a big help watching Eric, so Rich can get some sleep. When I got up this morning Aaron was sleeping in Anthony’s bed. So sweet, he really misses Anthony and worries about him. It has been a tough week and we will be glad to get Anthony home and get back to normal (such as it is for us).

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