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Aretha Hat a Hit!

Have you heard the hoopla around Aretha Franklin’s inaugural hat?  Her hat is a hit and the blogesphere is buzzing about it.  From what I’ve read, the hat was made by Luke Song, a hat designer from Detroit.  Mr. Song has been flooded with calls from women wanting the same hat.  Luke said that the hat would cost about $500 if he were to sell them, but the hand-molded, hat with the rhinestone bow is a one-of-a-kind hat made especially for Aretha. Song said, “Her particular hat, I will not sell a copy, even if someone offers me a million dollars.”

I admit that I googled Aretha’s hat to see where I could get one. Since I can’t get my own Aretha hat, I thought I could at least photoshop myself wearing one. Here’s my new Facebook Avatar.

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Track Lift

Several people have asked me about our track lift system. Because we have two children who use wheelchairs and who also have very different needs, our system is quite elaborate and probably more than most people with disabilities would need.  We have a “Surehands” system and it is a huge help.  Actually, more of a necessity now as the boys are 15, over 100 lbs each, and still growing.

Here is a view of the track in the kitchen.  This track covers most of the first floor and runs from the kitchen all the way through the living room.  The track to the right goes into the bathroom over the toilet.  The round thing in the center is a switch, sort of like a railway train switch to a second track off to the right.

Here is a view from the living room into the kitchen.

The box on the rail is the motor.  There are a couple of different kinds of motors and several different models.  They have portable motors that can be moved from one track to another.  We opted for permanent motors.  This motor rides along the track as well as up and down via the controller in Eric’s lap.  Some models have wireless controls, which would be better since the wire tends to get tangled.  But the wireless motors are more expensive.  In this photo, Eric is using the SureHands “body support”, which mimics a strong pair of hands.

Anthony can’t use the body support, because he has very little trunk or head control.  We use this sling for Anthony.  Eric can use either the body support or the sling.

We have a platform lift to take the boys up to the second floor.  I’ll have to post some photos of that soon.  On the second floor we have two separate tracks in the bedrooms.  In the master bedroom we have a track that runs from the bedroom into the bathtub.  This is an older model motor.  Some of our system is second-hand in order to save a few dollars.  Eric is in a water proof bath sling.  Anthony can not use this sling, but we also have a roll-in shower chair for him.

The motor runs by a rechargeable battery and the control works by forced air rather than electricity.  So, no worries about dropping the controller into the tub.

Here is the track in Eric’s room.  This motor only goes up and down and slides manually along the track.  Not as nice or as sturdy as the motor downstairs that moves long the track, but again, less expensive.

This is a hoyer lift on our back patio to lift Eric in and out of his hot tub.  He also uses the same bath sling in the hot tub.

Our system cost around $30,000 (not counting the outside hoyer lift).  Our private insurance covered 80% of the cost, which is super.  Many insurance policies will not cover lift systems.  Medicaid will pay for simple lifts, but usually not something as extensive as ours.

The company who installed the system is called “Lift and Care Systems” in Lakeville, MA, (508) 947-3304.  They were very nice to work with and did a super job.  The instillation was a lot of work, because the doorways had to be modified and the ceilings had to be cut open and reinforced in order to handle the weight of the system.  The lift will support over 400 lbs.  With the help of this system, I should be able to care for the boys for many years to come.

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WhiteHouse.gov

As soon as Obama was sworn in as the 44th President of the United States, his new WhiteHouse.gov site went public.  One of the first signs that this “Change” will be good.  This tech-savvy president understands the importance of the internet in our new globel society.  If you’ve ever visited the old site, you will immediately see improvement as the first “wired president” takes advantage of the technology that helped to get him elected.

The new site is interactive and includes a blog.  Obama plans to use this new site to stay connected with citizens through the blog and also email and video updates.

A couple of things that struck me on my first visit was that you can email the president from the site and subscribe to email updates.

On the contact us page it states:  “President Obama is committed to creating the most open and accessible administration in American history.”

Under agenda and disabilities, I found the following quote:

“We must build a world free of unnecessary barriers, stereotypes, and discrimination…. policies must be developed, attitudes must be shaped, and buildings and organizations must be designed to ensure that everyone has a chance to get the education they need and live independently as full citizens in their communities.”
— Barack Obama, April 11, 2008

p.s.  Remember it’s whitehouse.gov, not to be confused with whitehouse.org, which is a spoof site.  Got to love the Internet!

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Inauguration Day on Twitter

According to twitter’s blog, they received 5 times the normal tweets per second which peaked as Obama was being sworn in as the 44th president of the United States.

Other social-networking sites also reported surges.  Facebook received more than one million status updates with an average of over 4,000 updates per hour, which peaked during Obama’s inaugural speech.  This was a record for Facebook, one of the Internets most popular social networks.

My tweets and updates were among the millions who watched the days events and followed the news on-line.  The internet sure can bring people together and it makes the world a much smaller place.  I thought Barack’s speech was excellent and right for the times.  The world has changed and we need to adapt.  It is such a relief to have a competent leader in the White House during these difficult times.

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