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Update – Thursday

Anthony is having a good day. The plan was to send him to the pediatric floor today, but again they were unable to start a peripheral IV (after sticking him four times). They don’t really want to send him to the floor with his central line and he still needs an IV. His belly is a bit distended and hard and he has no bowel sounds yet. They can’t start his G-tube feedings until his bowels wake up.

He did not have a fever last night or today, which is good news. They removed the drain from his back. He is now on PRN (as needed) pain medication, but is needing 4mg of morphine every few hours. Pain control is a priority at this time. They may try getting him up in a chair today or tomorrow. I have not seen the orthopedic doctor yet today, so still not sure if Anthony will need a body jacket.

They are planning to do an x-ray of his back on Friday, but I did get my hands on a copy of one of his chest x-rays which shows some of the hardware. It looks much better than I expected, like a double rod with wires attached to the sides of each vertebra. Much neater and straighter than other x-rays I’ve seen of kids who have had spinal fusions.


5 thoughts on “Update – Thursday

  1. Cheryl fettig(anthony's teacher) says:

    We’re all so glad he is doing so well! Our class is just not the same without him. Let us know when we can visit. Give him a kiss for all of us! CAN”T BELIEVE HOW STRAIGHT HE IS! take care if you need anything The SMILE clan…

  2. cindy says:

    You are all welcome to visit once he is out of the ICU, which will be very soon, maybe even tonight. Or you can visit him once he is home. He will probably be out for school 6 – 8 weeks.

  3. Ann says:

    Beautiful picture. I’m just a wee bit jealous (in a way only another special needs mom can be 🙂

    Glad to hear things continue to move in the right direction. Anthony is a trooper!

  4. cindy says:

    I understand Ann; I wish Jack’s x-ray looked as good as Anthony’s… Honestly, I didn’t expect Anthony’s to look that good. Needless to say, we are thrilled with the results. Anthony is a strong boy!

  5. Barb (TA) says:

    That is one serious rod he has. Wow… interesting to see. Thanks for the peek. 😉


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