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Anthony’s Big Surgery

We spent 4 hours at the hospital Monday for Anthony’s pre-operative testing. On Monday October 2, Anthony will have his spinal fusion surgery to correct his scoliosis. They had trouble getting blood and were not able to get enough to do all the tests they wanted. They said they will put in a central line in the OR, since his veins are so bad. They said he will probably be on a vent post-op too, due to his base-line condition and swelling from the surgery. The surgery will take 8-10 hours and he will be face down most of the time. He was catheterized for a urine specimen (he did not like that!), had a chest x-ray, met with anesthesia, etc., etc. Rough day, but Anthony sailed right through. He has no idea what’s coming…

A bit about scoliosis. Scoliosis is an abnormal curve in the back. Kids with cerebral palsy have a high incidence of scoliosis which often becomes severe as Anthony’s has. This can lead to sitting and positioning problems for kids who are wheelchair dependent, and ultimately leads to respiratory and cardiac problems. Anthony has a 70% curve and will be fused from T-3 (3rd thoracic vertebra) down to his sacrum. A spinal fusion is a “welding” process by which the vertebrae are fused together with bone grafts and hardware (screws and metal rods) are used to hold the back in place so that it heals like a single solid bone. I hope to get before and after photos of Anthony’s spine.

Here’s a diagram of the back so that you can see this surgery will cover most of his back, very big incision and the possibility of lots of complications. But Anthony is a strong boy and we are hoping for a successful surgery and smooth recovery period. He will be in the hospital 1 – 2 weeks, and will be in the ICU after surgery and will stay in the unit as long as he needs to be there. He will be out of school for 6 – 8 weeks, and will take 6 months to a year for a full recovery. But in the long run, this procedure should greatly improve his quality of life.

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He’s my brother

He Ain’t Heavy, He’s My Brother

The road is long
With many a winding turn
That leads us to who knows where
Who knows where
But I’m strong
Strong enough to carry him
He ain’t heavy, he’s my brother

So on we go

His welfare is of my concern
No burden is he to bear
We’ll get there

For I know
He would not encumber me
He ain’t heavy, he’s my brother

If I’m laden at all
I’m laden with sadness
That everyone’s heart
Isn’t filled with the gladness
Of love for one another

It’s a long, long road
From which there is no return
While we’re on the way to there
Why not share

And the load
Doesn’t weigh me down at all
He ain’t heavy he’s my brother

He’s my brother
He ain’t heavy, he’s my brother

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Welcome

After some research and a bit of a learning curve, here it is, our first self-hosted blog powered by WordPress. The fun for me was learning a bit about PHP, MYSQL and figuring out where the database was located on my server and how to use it. Now that the program is up and running, I need to think of something to say;-) I’ll have to get Rich to contribute, as he always has something to say!

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